It is with immense delight that we announce that we have completed our very first in-hospital data donation campaign!
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The Mission
Data Lake’s mission is to enable better, more equitable and data-driven care for patients all around the world. To achieve this, we have created an ecosystem capable of unlocking the market of medical data, collaborating with all the stakeholders involved in the process. Among these are Data Providers, Integrators, Trust Entities, and the most important group: Data Donors.
With Data Lake everyone can become a data donor; once a user’s identity is verified, they can authorize a transaction on a public blockchain to give us consent and power of attorney for accessing their medical data. On that basis, we can source the donor’s medical data from their healthcare provider(s), anonymize it, and give them the possibility to make it available to researchers. As long as they remain an active donor, they will also be eligible for rewards through our benefits panel.
Our system is due to fully launch in the following months, but until then we can still collect Data Donor consents in person – and that’s exactly what we have been doing!
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The First In-Hospital Campaign
In the last weeks, we have been physically present in several healthcare facilities, to talk to patients about data donation and help them become data donors. Our first in-hospital data donation campaign launched in several Polish healthcare facilities, where so far we have introduced the concept of data donation to hundreds of patients!
Fundacja Podaruj Dane (Polish for the Donate Your Data Foundation) is our boots-on-the-ground partner in Poland, and together we have created campaign signage and materials in Polish for patients (as well as custom stickers and chocolate bars for those who become Data Heroes)!
With a conversion rate of 30% (!), the feedback has been extremely positive, and we have already collected the first consents for medical data donation! That’s right, people are already donating their medical data and our system is working!
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Final Thoughts
The response we’ve had from the people we met in the hospital has been incredibly encouraging and insightful. It proves the viability of our project, and gives us real-world proof that people are willing to contribute their medical data to science (and benefit from it)! As we continue to learn from and improve our pilot program, we’ll also be focusing on increasing our healthcare partner network and building the foundations for European expansion!
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