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Category: Media, Awards & Partnerships

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Data Lake and Sanofi Join Forces to Create a Rare Disease Patient Registry graphics full Data Lake

Data Lake and Sanofi Join Forces to Create a Rare Disease Patient Registry

11-06-2024 No Comments

Warsaw, June 11, 2024 Press Release Data Lake, an innovative startup specializing in medical data management, partners with Sanofi Polska, a leader in the pharmaceutical industry. The aim of this partnership is to create the first patient registry in Poland for the rare disease ASMD (Acid Sphingomyelinase Deficiency) based on patient consent. ASMD is an ultra-rare genetic disorder characterized by the accumulation of sphingomyelin in cells, leading to damage to internal organs such as the liver, spleen, and lungs.

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Data Lake secures a Strategic Partnership with a top 10 Pharma Company for a Rare Disease Registry Case Study graphics Data Lake

Data Lake secures a Strategic Partnership with a top 10 Pharma Company for a Rare Disease Registry – a Case Study

29-01-2024 No Comments

A disease attains the “rare” designation when affecting <1:2,000 in the European Union and <1:200,000 in the US 1. Contrary to common perception, the impact of rare diseases is substantial. Nearly 8,000 rare disorders have been identified, affecting an estimated 260–440 million individuals globally, with a notable concentration among children, constituting a prevalence rate of 3.5%–5.9% 2. These staggering figures dispel the notion of rare diseases as isolated instances and underscore their status as a significant public health concern, affecting

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Enhancing Breast Cancer Patient Pathway through Data Donation A mid-term Case Study graphics Data Lake

Enhancing Breast Cancer Patient Pathway through Data Donation: A mid-term Case Study

16-01-2024 No Comments

Abstract This case study explores the successful implementation of Data Lake’s data donation technology by Donate Your Data Foundation in the context of breast cancer research in Poland, focusing on how it facilitated the collection of crucial information regarding the patient pathway and identified roadblocks in accessing therapy. The initiative involved collaboration between healthcare institutions, technology companies, and advocacy groups, leveraging the power of data to improve the overall quality of breast cancer care.

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Medical Data Donation to reach tens of millions of new patients thanks to Diagnostyka partnership with the Donate Your Data Foundation graphics Data Lake

Medical Data Donation to reach tens of millions of new patients thanks to Diagnostyka partnership with the Donate Your Data Foundation!

27-06-2023 No Comments

We believe that medical data donation is the key to unlocking a new era of ethical medical research; research which has the potential to cure many diseases and save the lives of millions. For this medical data donation system to work however, all stakeholders including patients, healthcare providers, and researchers need to be on board.

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Medical Data Donation Gains Traction with a Global Healthcare Company graphics Data Lake

Medical Data Donation Gains Traction with a Global Healthcare Company

17-05-2023 No Comments

We believe that medical data donation is the key to unlocking a new era of ethical medical research; research which has the potential to cure many diseases and save the lives of millions. For this medical data donation system to work however, all stakeholders including patients, healthcare providers, and researchers need to be on board.

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Data Donation launches publicly in Poland graphics Data Lake

Data Donation launches publicly in Poland!

15-02-2023 1 Comment

Fundacja Podaruj Dane (Polish for “Donate Your Data Foundation“) is a non-profit organization that acts as the trust entity for Data Lake’s medical data donation ecosystem in Poland. We’re pleased to announce that the organization has been recently featured in an article on Poland’s premier healthcare news site, Medonet.pl. Medonet is one of Poland’s oldest health services, and Medonet.pl – with its 70 million monthly views – is the go-to site for Polish patients to access information about health and

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You Can Now Receive $LAKE Tokens by Helping Expand our Ecosystem graphics Data Lake

You Can Now Receive $LAKE Tokens by Helping Expand our Ecosystem!

03-02-2023 No Comments

Dear Partner, Our health data is more than just numbers and words. What we call data are in fact millions of individual stories of struggle, defiance and perseverance. Stories of exploration of the unknown. Stories that carry immense value for the future generations. We believe that the world should learn from these stories. We believe, that being able to share your medical story securely to help others should be your fundamental human right. That’s what we stand for, building the

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DeSci Network Roundtable #1 DeSci Fad or Future graphics Data Lake

DeSci Network Roundtable #1 – “DeSci: Fad or Future?”

24-01-2023 No Comments

We’re thrilled to announce that the first DeSci Network Roundtable event was a huge success! The DeSci Network Roundtable brings together scientists, DeSci founders and enthusiasts and industry professionals to share innovative ideas, the latest advancements in science, and their vision for the future of the nexus of science, research and technology.

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Data Lake is a winner of Boost VC’s DeSci pitching competition graphics Data Lake

Data Lake is a winner of Boost VC’s DeSci pitching competition

20-12-2022 No Comments

We are excited to announce that Data Lake has won a DeSci-focused pitching competition hosted by Boost VC and secured an investment of $25,000! Boost VC is an early stage venture capital firm with $200m AUM in San Mateo, California. Boost VC’s mission is to accelerate the Sci-Fi Future (aerospace, VR/AR, energy, climate, robotics, crypto, bio, AI/ML, deep tech & more) by expanding into “Future Trillion Dollar Markets”.

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Data Lake Article in Bitcoin.com News graphics Data Lake

Data Lake Article in Bitcoin.com News

15-12-2022 No Comments

Our second article in Bitcoin News was recently published. In it we discuss the FTX news, why DeSci represents a return to blockchain’s fundamentals, and what we think the future holds for the technology!

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