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Data Lake and Sanofi Join Forces to Create a Rare Disease Patient Registry graphics full Data Lake

Data Lake and Sanofi Join Forces to Create a Rare Disease Patient Registry

11-06-2024 No Comments

Warsaw, June 11, 2024 Press Release Data Lake, an innovative startup specializing in medical data management, partners with Sanofi Polska, a leader in the pharmaceutical industry. The aim of this partnership is to create the first patient registry in Poland for the rare disease ASMD (Acid Sphingomyelinase Deficiency) based on patient consent. ASMD is an ultra-rare genetic disorder characterized by the accumulation of sphingomyelin in cells, leading to damage to internal organs such as the liver, spleen, and lungs.

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Data Lake secures a Strategic Partnership with a top 10 Pharma Company for a Rare Disease Registry Case Study graphics Data Lake

Data Lake secures a Strategic Partnership with a top 10 Pharma Company for a Rare Disease Registry – a Case Study

29-01-2024 No Comments

A disease attains the “rare” designation when affecting <1:2,000 in the European Union and <1:200,000 in the US 1. Contrary to common perception, the impact of rare diseases is substantial. Nearly 8,000 rare disorders have been identified, affecting an estimated 260–440 million individuals globally, with a notable concentration among children, constituting a prevalence rate of 3.5%–5.9% 2. These staggering figures dispel the notion of rare diseases as isolated instances and underscore their status as a significant public health concern, affecting

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Medical Data Donation to reach tens of millions of new patients thanks to Diagnostyka partnership with the Donate Your Data Foundation graphics Data Lake

Medical Data Donation to reach tens of millions of new patients thanks to Diagnostyka partnership with the Donate Your Data Foundation!

27-06-2023 No Comments

We believe that medical data donation is the key to unlocking a new era of ethical medical research; research which has the potential to cure many diseases and save the lives of millions. For this medical data donation system to work however, all stakeholders including patients, healthcare providers, and researchers need to be on board.

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Data Lake and GenomesDAO are Teaming Up graphics Data Lake

Data Lake and GenomesDAO are Teaming Up!

06-06-2023 No Comments

We are thrilled to announce that Data Lake and GenomesDAO are joining forces! At Data Lake, we’re building and implementing cutting-edge technologies to help advance research, and improve access to treatment. We’re also the technological provider for a groundbreaking system that enables patients to gain control over their medical data in a privacy-respecting way, and consent to sharing it with entities performing ethical, pro-patient research.

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