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Category: Press Release

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Data Lake and Sanofi Join Forces to Create a Rare Disease Patient Registry graphics full Data Lake

Data Lake and Sanofi Join Forces to Create a Rare Disease Patient Registry

11-06-2024 No Comments

Warsaw, June 11, 2024 Press Release Data Lake, an innovative startup specializing in medical data management, partners with Sanofi Polska, a leader in the pharmaceutical industry. The aim of this partnership is to create the first patient registry in Poland for the rare disease ASMD (Acid Sphingomyelinase Deficiency) based on patient consent. ASMD is an ultra-rare genetic disorder characterized by the accumulation of sphingomyelin in cells, leading to damage to internal organs such as the liver, spleen, and lungs.

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Medical Data Donation Gains Traction with a Global Healthcare Company graphics Data Lake

Medical Data Donation Gains Traction with a Global Healthcare Company

17-05-2023 No Comments

We believe that medical data donation is the key to unlocking a new era of ethical medical research; research which has the potential to cure many diseases and save the lives of millions. For this medical data donation system to work however, all stakeholders including patients, healthcare providers, and researchers need to be on board.

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