Day: October 15, 2024

Press Release Data Lake and INPDR Sign MoU to Advance ASMD Patient Registry Date: October 15, 2024 Location: Warsaw, Poland   Data Lake, an operator of the Polish ASMD Patient Registry, and the International Niemann-Pick Disease Registry (INPDR), a global organization dedicated to improving outcomes for patients with Niemann-Pick Disease, are pleased to announce the signing of a Memorandum of Understanding (MoU). This strategic collaboration aims to enhance the development and management of a patient registry for Acid Sphingomyelinase Deficiency